Young Epilepsy, a charity supporting epileptic children and their families and carers, launched the programme in co-operation with Viropharma at the recent British International League Against Epilepsy Congress in Glasgow.
The programme addresses issues raised in an article published in Archives of Disease in Childhood in July, which included the suggestion that a lack of training, guidance and legal frameworks for carers of epileptic children has resulted in unnecessary ambulance call-outs.
Young Epilepsy’s campaign stresses the importance of good practice in rescue management for seizures in children, particularly to avoid status epilepticus, when one seizure or a cluster of short seizures last for more than 30 minutes. The longer a seizure lasts, the less likely it is to stop on its own or with the help of emergency medicines. The dangers of status epilepticus can include brain damage.
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