The proposed record, which is a voluntary measure and would be written from the child's perspective, is closely linked to the Orange Book, the parent-held 'unified health file' developed by Cornwall Partnerships NHS Trust. It will travel with the child to school, respite care and hospital so that all professionals and carers have the latest details of the child's special needs.
Wales' version of the Orange Book will be piloted in selected sites from the end of this month and will be evaluated through focus groups involving parents and children. The Welsh National Assembly said last week that the results will be sent to all local health boards, NHS trusts and local authorities for comments.
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