As part of an ongoing research project, we asked parents of disabled children to look back at their experiences of parenting a disabled child (see box). This led us to think about how parents/carers discover, in the early years, that their child is disabled, and what this means for them and the children.
INTERVIEWS
The discussions here are drawn from interviews with two mothers of disabled children.
- Gayle
Gayle is in her early forties and has one child, an 11-year-old son, Simon, who has been diagnosed with Asperger's Syndrome. Gayle works for the Home Office during term-time only. Both Gayle and her partner are able to work flexibly so that someone is always there to take Simon to school or to pick him up. Simon's father lives 200 miles away from the family and visits in the school holidays.
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