Action Cerebral Palsy says that too many children and families in the UK are missing out on support because there is no system for recording the number of people with the condition.
The charity’s new report, which will be launched at an event in Parliament today, cites research into pioneering intervention models in Australia, a world leader in the treatment of cerebral palsy, which has improved outcomes for babies and children with the condition.
The Australian Cerebral Palsy register, which collects data on children with cerebral palsy across Australia has created 'an invaluable data bank' to inform research, which has led to improved practice in screening, diagnosis and intervention, the report says.
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