The conference on baby and child deaths, which was organised by the Child Bereavement Trust, brought together 700 delegates, including 150 paediatric doctors. Parents of young children who had died in various tragic circumstances also shared their experiences with hospitals.
Alan and Julie Jarvis, whose four-year-old son Matthew had special needs and died in Alder Hey in December 1990, spoke of the importance of parents being listened to in hospital. They said, 'It is important for consultants down to auxiliary nurses to listen to parents when we say our children are taking a turn for the worse - more especially when it is parents of a special needs child. We know our children the best. '
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